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Medical Links

General – You can often access information about an injury or condition online. Several medical journals have online abstracts or article listings.

  • Life Expectancy for Cerebral Palsy, Vegetative State, Traumatic Brain Injury and Spinal Cord Injury – This website is for a research group which specializes in life expectancy calculations based on standard actuarial and biostatistical procedures. They have applied these scientific methods to data on children born with cerebral palsy, persons in a vegetative state, and to those who have suffered spinal cord or traumatic brain injuries.
  • The New England Journal of Medicine – This website allows you to search previous journals on a number of medical topics providing users with some of the most current research available.
  • National Institute of Neurological Disorders and Stroke (NINDS) – NINDS aims to reduce the burden of neurological disease by conducting and fostering research on the causes, prevention, diagnosis and treatment of neurological disorders and stroke.
  • Medical Information, Forums and Communities – MedHelp was founded in 1994 to help you get the best available online medical information. The site allows you to ask medical questions to top doctors from the world’s best healthcare institutions. You can also get medical advice and support from others with similar experiences.
  • NGC – National Guideline Clearinghouse – NGC is a public resource for evidence-based clinical practice guidelines. The mission of NGC is to provide physicians, nurses and other health care professionals an accessible mechanism for obtaining objective, detailed information on clinical practice guidelines.
  • The Joint Commissionon Accreditation of Healthcare Organizations requires providers to report “sentinel events” that occur in their facilities. Reports and accreditation surveys and sentinel events are available online.
  • American Academy of Physical Medicine and Rehabilitation (AAPM&R) – This organization is for physicians who are trained to restore function in patients suffering from acute and chronic pain, musculoskeletal problems like back and neck pain, tendonitis, pinched nerves and fibromyalgia. They also treat individuals who have experienced catastrophic events resulting in paraplegia, quadriplegia, or traumatic brain injury.
  • American Chronic Pain Association – The mission of this organization is to facilitate peer support and education for individuals with chronic pain and their families so that these individuals live more fully in spite of their pain. This site is beneficial for those afflicted with chronic pain as well as their caregivers, family members and professionals.

Brain Injury

  • The Brain Trauma Foundation – The mission of BTF is to improve the outcome of Traumatic Brain Injury patients nationwide. BTF focuses on finding scientific, evidence-based treatment guidelines that can control secondary damage in TBI cases. This website provides information and resources regarding the most current and effective guidelines for treatment.
  • Brain Injury Association of America – BIAA serves and represents individuals, families and professionals who are touched by a life-altering traumatic brain injury. The BIAA provides information, education and support to assist the victims of TBI.
  • International Brain Injury Association – IBIA is dedicated to the development and support of multidisciplinary medical and clinical professionals, advocates, policy makers, consumers and others who work to improve outcomes and opportunities for persons with brain injury. This site includes a section that deals with facts regarding brain injury.
  • American Association of Neurological Surgeons – The AANS is an organization that is dedicated to advancing the specialty of neurological surgery in order to promote the highest quality of patient care. From this site you can access research regarding neurosurgery as well as locate a skilled neurosurgeon.

Spinal Cord

  • The National Spinal Cord Injury Association – NSCIA is the nation’s oldest and largest civilian organization dedicated to improving the quality of life for hundreds of thousands of Americans living with the results of spinal cord injury and disease. NSCIA provides a resource center to answer questions and a peer support network referral program linking people with SCI/D to each other.
  • Spinal Cord Injury Resource Center – This site contains a vast amount of information helping to explain basic anatomy, physiology, and the complications resulting from a spinal cord injury.

Amputations

  • Society for Vascular Surgery – This site explains the reasons an amputation might be necessary and also gives details on the procedure as well as the recovery from the procedure.
  • National Limb Loss Information Center – The Amputee Coalition of America operates the NLLIC in an effort to provide comprehensive resources for people with limb loss, as well as their families, friends, and the health care professionals involved in their lives.

Orthopedic Injuries

  • American Academy of Orthopedic Surgeons – This site provides information regarding a variety of orthopedic injuries and their various courses of treatments.
  • Orthopaedic Trauma Association – This organization is a source for optimum treatment and prevention of musculoskeletal injury. The site includes educational resources, patient education and related links and resources.

Reflex Sympathetic Dystrophy / Complex Regional Pain Syndrome

  • Reflex Sympathetic Dystrophy Syndrome Association – RSDSA was founded in 1984 to promote public and professional awareness of RSD. This website is designed to give patients, family members and healthcare providers the most up-to-date information on treatment, legislation, support groups, research, fundraising and patient stories.
  • National Institute of Neurological Disorders and Stroke (NINDS) – NINDS provides a fact sheet which defines RSD / CRPS as well as discusses the symptoms, diagnosis, prognosis, methods of treatment and current research.
  • American RSDHope – This website is an excellent informational website for those dealing with RSD / CRPS. The site includes a description, signs, symptoms, etiology, facts, articles, videos, brochures and raises RSD research funds.
  • International Research Foundation for RSD / CRPS – The International Research Foundation is a not-for-profit organization that aims to establish an international forum to conduct research and educate people regarding RSD and CRPS. The website includes clinical practice guidelines and educational videos.

Trauma